FAMILY UPDATE

Well, the Pontier family feels huge! last year at this time we had no kids and now we have two! Hopefully I'll get some pictures up after our visit today but here's the play-by-play for now

Scott: Now officially the only member of the family who has not been hospitalized in the last year.... but might need to be institutionalized soon instead! I'm pretty exhausted from trying to figure out how to manage everything. I tend to be a guy who lives in the future (not literally, like that asian kid in "heroes") and plans everything out so that most things are expected when I get to them. it keeps me sane to think days and weeks ahead and make sure my ducks are in a row. when it comes to this though... the world is inverted. By necessity I have to live in the "right now" and roll with whatever happens. I need to adjust on the fly and I'll waste time if I spend it too much in the future - b/c it just changes so much from day to day. Stress for me for sure - but so far we're coping:)

Cindy: Her body is healing but it will take a while - she's feeling pretty bummed out about lots of things right now, including feeling isolated from people in her community that she loves. But she loves jonah a lot and Isaac - and it's hard to love both of the boys and not be able to do anything for EITHER of them right now.

Isaac: Pretty clueless. But lots of attention from grandparents right now - so he's happy. plus he gets to pee his pants whenever he wants - so not a bad deal

Jonah: he had a big day yesterday: he got his 2nd blood transfusion of the week and a picc line put into his heart so they don't have to keep poking him with IVs. he also came off his ventilator last night and put on a CPAP which is great news for him but is a little scary for us b/c of the CPAP battles we had with Isaac which we remember too well. But he remains strong and seems a bit more fiesty than Isaac so I'm sure he'll do just fine.

as a family, we are about to say good-bye to both our parents which I know will leave us feeling somewhat lonely. It's definitely hard to be away from home for this. We're just glad that God has prepared us in the ways he has to handle this.

Happy mother's day to all and I'll post some more pictures later tonight probably.